Diary of a Mad Scientist

For my birthday, I want remission. Please?

I’ll settle for continued improvements. I had about 5-6 days of no pain this week. Major hooray. I still don’t quite feel normal and I feel like I’m on the verge of a health crash, but I have long, long, long periods each day of “normal” for the last few days. Yesterday I worked for 6 hours straight, with productive workflow and reasonably smart decisions. My drug are starting to have effects I can measure, the symptom control is make sense again and I can tell that there’s cause and effect when I take something that should have an effect, which wasn’t the case for the first 6 weeks or so of Mepron, and not for months before then when I wasn’t treating the right things.

I’m sure it’ll all crash again- I seem to be right on schedule for what happens about 8 weeks into babesia treatment, and people go through nasty crashes and relapses- but man I don’t wanna go there, I don’t wanna go there, I want to stay like this and bask in the warmth and light and have a life again.

For my birthday weekend, I spent literally 12 hours today cooking up a storm for tomorrow’s Local Lunch for Piedmont Biofuels Industrial. My friend Jaime and I are making brunch for the dietarily challenged- super low-carb, fancy, vegan, etc. Me and Jaime prepped a whole pallet load of food- it’s in ECO Organics commercial cooler and it currently occupies one full pallet, which means, I think, that we made 2.6 metric assloads of food and may need a forklift or at least some interns to move it back to the kitchen- and Guest Chef Matt came and contributed about 3 gallons of Bad Carbohydrates in the form of eggy potato pancake batter and homemade applesauce, to balance us all out.

I couldn’t have done this last week without a lot more help. I couldn’t have done this four days ago and not felt like crap. And, I’m so beautifully grateful that my interest in cooking is coming back.

I’m waking up, I think. I’ve been seeing the light, or the beginning of the light, or glimmers of the light in the distance, for about 2 weeks now, but I’ve got solid evidence now that it’s really starting to get better. Knowing what I know about the disease, it’ll probably be it’s a long series of ups and downs again, but I’m at least able to think about making plans and I’m getting so excited about them.